My story could take days to tell, but I'll try to keep it short.
In 2000, I had a gastric bypass to lose weight. I started losing weight but my gall bladder was already removed. I went through 4 bouts with chronic pancreatitis, and a huge hernia repair which seemed to be the final straw!! I had severe pain when eating and there were no "go to" foods. What I ate had to be pureed and in less than two years I lost 100 pounds. I had to go on 'big guns' opiates for 3yrs just to function. In a 6 month period I had 5 feeding tubes, each one with a different problem.
Finally I said if I couldn't survive by eating enough that was that. I thought life was over. I headed to that "dark place" and was ready to die. Then a small voice came to me and said there is HOPE, you are not alone. I found through the groups many people struggling like me. A spiritual PEACE started to come over me. I remembered "Let go and let God". My favorite saying is: "Action is the magic word"!! I became an advocate for awareness. For 13 yrs in and out of ER's being told it was all in my head and that I was a drug-seeker. Now I know that was never true.
I am still in pain some days but I have found PEACE through a renewed faith. I can't have rainbows without ☔ rain. I won't quit before the miracle!
Carolyn is also a #patient #advocate and is owner of a support group: